Loving Families | Sharing Knowledge | Supporting Research
The cost of medical care for the families of children fighting challenging medical situations goes far beyond the monetary cost. The emotional and physical toll of frequent clinic visits and/or hospital stays is enormous, as well. Love Like Crazy Foundation shows tangible love to these families to ease some of the burden and fill in the gap. In doing so, families are able to focus on what matters most…caring for their child and immediate family.
Some acts of love include:
How can you help love families?
The Love Like Crazy Foundation seeks to educate about mitochondrial disease, especially Pearson Syndrome, and caring for children with other complex illnesses. A significant aspect of this portion of the mission is hosting Grand Rounds at OU Children’s Hospital in Oklahoma City, Oklahoma.
Within a hospital community Grand Rounds is a vital and fundamental component of continuing education for medical professionals on many levels. Historically, Grand Rounds was set up with an attending physician and a patient in order to show interesting medical findings or to provide education about new surgical techniques. The Grand Rounds theater was meant to teach anyone who was present about a little known topic or to update the audience on the latest advancements.
Presently, Grand Rounds is known for being the venue where medical students, nurses, social workers, chaplains, physicians, and others listen to lectures by visiting professors or by members of their own institution to disseminate innovative ideas in medicine. These lectures are open to all specialties, providing an opportunity for professionals to gain up-to-date knowledge about evolving areas, which may be outside of their core practice.
The Love Like Crazy Foundation will host its inaugural Grand Rounds and Bennett Hanneman Lecture in May 2019.
The Love Like Crazy Foundation supports research toward improved treatment and a cure for mitochondrial disease, especially Pearson Syndrome, a pediatric disease caused by mitochondria DNA deletions.
“Further research into the mitochondrion and primary mitochondrial diseases (those due to genetic defect) would benefit millions of people. It would offer hope to thousands suffering from this disease.” UMDF
“Every 30 minutes, a child is born who will develop a mitochondrial disease by age 10. Each year, 1,000 to 4,000 children in the United States are born with a mitochondrial disease. While exact numbers of children and adults suffering from mitochondrial disease are hard to determine because so many people are frequently misdiagnosed, we now know the disease is approaching the frequency of childhood cancers. Many are misdiagnosed with atypical cerebral palsy, various seizure disorders, childhood diseases and diseases of aging. Still others aren’t diagnosed until after death.” UMDF